Saturday, May 28, 2016

5 Down, 5 to Go


5th Century - The Capital Area Greenway Century May 23rd


Greetings friends & family, I’m overdue for an update on my quest to complete 10 Centuries.  5 down, 5 to go!!!  Since my first ride at the “After the Bridge Run Ride” in Charleston SC, I’ve completed 5 100-mile rides in a space of 7 weeks, one every other weekend.  I’ve had to make one adjustment to my schedule – I did not ride in the 2nd day of the Tour de Cure on May 17th, as I had to attend the funeral of a friend that day – so I created a “Capital Area Greenway Century” and rode 106 miles last Sunday (May 24th) to make up for the miss on May 17th.

The riding has been pretty good, and I’ve only had to deal with one thunderstorm, three weeks ago during the Raven Rock Ramble.  I’ve avoided any significant injuries, and I have to say that as I have completed more rides, they have become a little easier, though I always seem to struggle through the final 10-15 miles.
           
Fund raising is going well and I am VERY thankful for all of you who have made a donation to the cause of curing blood cancers!  A great deal of progress has been made in the development of treatments, but it is still the case that one-third of patients diagnosed with a blood cancer do not live beyond 5 years.

There are two people close to me currently fighting – my Dad’s very close friend Walt, battling multiple myeloma, just received a transplant of his own stem cells, and a good friend of mine has a son named Brandon who was diagnosed with chronic myeloid leukemia several months ago – he is being treated with the drug Gleevec, a miracle drug that was developed in part with funding from LLS.

Next Sunday, June 5, I’ll ride in the Fletcher Flyer out in the Asheville area., which will be my 6th ride.

Ride #7 will be the Velo4Yellow ride on July 16th, out of Wake Forest.


As you can see, I am working very hard for a cure!  Please consider making a donation, every dollar goes to help saving lives!!  Thank you again for your support!!DONATE BUTTON :-)

Sunday, March 27, 2016

Ready to Ride.....

Hey Y'all, Happy Easter!

One week from today I will participate in my first Century ride.  The "After the Bridge Run Ride" will be Sunday April 3rd near Charleston, SC.  I'm heading down there on my own on the 2nd and staying in a local Econo-Lodge.  According to my "Map my Ride" app, I have ridden 540 miles this year in preparation for this 1st Century.  This kicks off a rapid series of century rides pretty much every 2 weeks until the Fletcher Flyer in early June, which will be my 6th, out of my goal of 10.

I rode 80 miles yesterday and was able to finish relatively strong, so I am confident that I am ready for next week.  I didn't get as much training in as I intended, thanks to two colds over the last month plus a nagging back issue.

Thanks for your interest and support.  I'm doing this of course to raise money for the Leukemia and Lymphoma Society (LLS).  You can make a donation to the cause at this link:

Dan's Fundraising Page

Saturday, January 23, 2016

"I Will Ride 500 Miles, and I Will Ride 500 More"

            Greetings and a Happy New Year to everyone!  (The title of the blog post comes from a song by The Proclaimers.)  Where to begin?  It's been a long time since my last post, but in the interest of brevity, I will stick to the main points and current news.  First, I celebrated my 4th 2nd birthday on Dec 21, meaning the 4th anniversary of my transplant.  My health was excellent in 2015 - I don't recall being sick during the entire year.
           
Caught this Musky on a fly rod in Wisconsin, October 2015 
            After the Christmas holidays, just last week, I was in Houston for my 4 year checkup, and the news was again very good - clear CT scan and normal bone marrow biopsy.  I'm told that the longer I stay in complete remission, the lower the probability of relapse.  Dr. Hosing actually told me that from her viewpoint, I did not need get annual bone marrow biopsies or CT scans anymore, unless something in my blood counts changes or I develop other symptoms.  Which means, among other things, that I may not be going back to Houston for a while, maybe never.  I tracked Dr. Keating down at his office that evening around 5:30 to thank him in person again and to say so long for now.  It was a huge milestone in my cancer story.  Most websites still say there is no cure for CLL, but a successful bone marrow transplant definitely walks and quacks like a cure!  I'm inexpressibly grateful to the Lord, my doctors, my family, my friends.
On the Missouri River with Dad, October 2015

              I have been spared, but in 2015 cancer continued to devastate.  I lost several acquaintances last year to various forms of cancer.  One colleague at IBM was diagnosed in June with stage 4 pancreatic cancer and died within 5 months.  One of my best friends had a close colleague taken in November.  St. Jude's hospital in Memphis continues to be filled with young cancer patients.  So I will continue to put my recovery to good use by completing endurance events and raising money for the fight against leukemia and lymphoma.  Last year I executed the "Triple Play", the half-marathon, double century ride, and hike in Yosemite, and raised over $30,000.  I spent time during the holidays thinking about what I might do in 2016, and what came to me is to commit to completing 10 century rides, for a one thousand mile odyssey.   Why?  Well, I like to push the boundaries of what cancer survivors can do, and I want to inspire others - to ride, to walk, to run, to give.
           
             So 2016 will be all about cycling.  I have already ridden 4 times since mid-December, 2 rides of 25 miles and more recently 2 rides of 50 miles.  I will keep track of my training miles too, as I suspect that I will log another thousand miles or more in training.  I have scheduled 8 rides so far:

April 3 -       "After the Bridge Run Ride"       Charleston SC
April 14 -     "Tarwheel Century Ride"            Elizabeth City, NC
May 1 -        "Raven Rock Ramble"                 Raleigh, NC
May 14 -      "Tour de Cure" Day 1                 Raleigh to Sanford, NC
May 15 -      "Tour de Cure"  Day 2                 Sanford to Raleigh, NC
June 5 -        "Fletcher Flyer"                            Fletcher, NC (near Asheville)
July 16 -       "Velo 4"                                       Wake Forest NC
October 2 -   "Bike MS Ride"                           New York City

There are two more rides that I need to schedule in the 2nd half of the year, and I will as soon as the various rides have dates selected and I can finalize the calendar.  I am very excited about this challenge, as it will sustain my focus and interest for the better part of the year - I am glad that you will be with me along the way!  Warm wishes for 2016!    




              

               

           

Sunday, May 10, 2015

One Week to the Tour de Cure!

Meadow at Mile 24 Along the Neuse River Trail

Happy Mother’s Day to all!  

Time is flying by….since my last update, I have ramped up my cycling over the last 3 weeks, starting with two 40-mile rides the first week, (one day in between), to two 50-mile rides the second week, and rides of 60 and 67 miles last week!  that will toughen up your kiester.  The Tour de Cure is less than a week away.  I rode a short 20 mile spin this morning before church just to keep the callouses firm - I will do a couple of back-to-back rides this week to get into final form for the 200 mile grind this coming weekend.  I’ve been doing most of my training rides on the Neuse River Greenway, a beautiful 33-mile long resource, safe from lunatic drivers on the highways who have anger management issues :-)

As soon as the bike ride is over I will begin training for the third leg of the Triple Play, an 18 mile day-hike through the heart of Yosemite - starting at 4,000 foot elevation in the valley, then soaring (on foot) 3,800 feet to the top of the cliffs at Glacier Point, then hugging the cliff tops until we descend again back to the valley along the John Muir Trail - it will be a happy reunion between me and that special trail, even if only for a few miles.  Altogether we will hike 18 miles, if all goes according to the plans of men ;-)

A heartfelt  THANK YOU!!  to those of you who have made a contribution to the cause of curing blood cancers.  There is still time to make a donation to the Leukemia and Lymphoma Society, the charity that I run, cycle, and hike for.  It’s a wonderful organization, committed to making deadly blood cancers a thing of the past.  Remember, leukemia is the #1 childhood cancer.  

Thanks for your support - here is the link to my fund raising page - God bless you and yours and have a GREAT Mother’s Day!!  Dan 

Dan’s Page:  

Monday, April 27, 2015

Rocked the Half Marathon!! Double Century is Up Next!


Hello Friends and Family!  Well this update is overdue but the big news is that the first leg of the Triple Play is successfully completed!  I “ran” the Raleigh Rock and Roll half marathon in 2 hours and 25 minutes.  I was able to run through the halfway point, but somewhere around mile 8 or 9 I found myself walking up some of the hills in downtown Raleigh.  I didn’t make a conscious decision to walk, my body just stopped running and started walking!  All in all, I think I ran about 10 or 11 out of the 13.1.  Not bad, all things considered. 
The inspiration dinner the night before the race was wonderful, and I was fortunate enough to be honored as the top fund raiser for the Team in Training!  All thanks to all of you!!! 


Well now my attention turns to cycling.  It took me a few days to work out the stiffness and soreness from the run, but by Wednesday I was back on my stairmaster, 40 minutes a day.  Today will be my first cycling workout since the Half.  I will be riding today with Rob Allan, a fellow Tour de Cure participant and my team captain.  The Tour is going to be upon me very soon – 3 weeks fro Saturday, so I need to train intensively.  I will keep you posted.  Thanks for all your encouragement and support!  GO TEAM!!  Dan
Approaching the Start

Sunday, April 5, 2015

First Post of 2015

Cozumel, January 2015 with Renee, Rachel, and Alex
         
          Wow, friends and family, I'm not sure what to say about a 6-month hiatus from blog posting.  It's not that nothing has happened, and I'm not coming back to the keyboard because there's anything momentous to report.  It's just been too darn long and I have no excuses.  First, on the medical front, since I last posted in September, I've been to MD Anderson for my 3-year check-up, and everything checked out fine again.  Many of you know that, and I hope that those of you who didn't assumed that no news was good news.  I am now coming to the 3 year anniversary of the date when I was first told that I was cancer-free, about 4 months after my transplant.  For Richter's transformation patients, being alive after 3 years is something that only a small minority experience.  I am blessed to be here.  More than that, I am blessed to be a disciple of the Savior, Jesus Christ, whose resurrection we celebrate today.
            I have not been bothered by my Mycobacterium Avium Complex (MAC) which I was diagnosed with last July or August.  I've been training for a half-marathon which is coming up next Sunday (Rock and Roll Raleigh Marathon and half-Marathon), and while I still use the inhaler occasionally, I'm pretty fit for a guy my age.  I've committed to what I am calling the "2015 Triple Play" for my blood cancer fund-raising project this year.  In addition to the Marathon on April 12th, I am planning to ride in a bicycle event called the NC Tour de Cure, which is a 'double century', 100 miles on May 16 and another 100 on May 17th.  Finally, I plan to join another Team in Training (TNT) event in Yosemite National Park on June 13th, and complete a 20 mile day hike.  I'm doing the fund raising for these 3 events combined, so I have one web page and one goal of $30,000.  If you want to donate, the link is http://pages.teamintraining.org/vtnt/Yosemit15/drooker  As always, the donations go directly to the Leukemia and Lymphoma Society, which funds research dedicated to finding a cure for blood cancers.
             So for the last 2 months I have been training to some extent for all 3 events - I have advanced from a 3 mile jog up to a 7 mile run.  I will do one more run before next Sunday's race.  I expect to be able to run at least 10 miles out of the 13 on race day, and I am not hung up on 'performance' as some would like me to be.  I just want to cross the finish line before they pick up all the cones :-).
            I have also been walking the golf course once a week while carrying my bag to keep my 'hiking feet' in some semblance of readiness.  I have used my "Runkeeper" app while I play so I know that the entire course comes out to just under 7 miles, and that's with about 30 pounds of clubs and equipment on my back.
           Finally I have been riding my road bike at least once a week, usually for between 35 and 45 miles.  Once I get past the half marathon I will focus much harder on the cycling.
           27 people have donated to my cause so far, for a total of $14,550.  Every dollar helps, but I want to give an honorable mention to Eddy Tsang, who, for the third time, has donated $10,000 to a TNT event of mine.  I have known Eddy for almost 20 years now and while I can share many of his great qualities with you, his generosity speaks for itself.  Thanks Eddy!
           On April 24th I will be the keynote speaker, giving a survivor's perspective, at the North Carolina LLS Chapter's Annual Blood Cancer Conference.  Details here:    https://www.facebook.com/events/1406636796308021/

            Well, the Triple Play and the Blood Cancer Conference are the "big things" coming up.  Every day is a blessing and the rest of the family is doing well.  I hope and pray that this post finds you well and I look forward to hearing from you via calls, emails, or comments here on my blog - Happy Easter everyone.  Dan

Sunday, September 7, 2014

Wild Montana Skies

Wiith Kenyon at Rock Creek Tuesfay 
On the Clark Fork Friday 

Tuesday, July 29, 2014

Lung Follow-Up

Kenyon and (Joliet) Jake in my hospital room on June 11

Hello, and my apologies for keeping you in suspense for a month and a half, but it has taken a long time to solve the mystery of what caused my lung (choose your favorite word: infiltrate, nodule, mass, granuloma) _________.  I suppose now we can add "infection" to the list of choices, because the infectious disease (ID) docs have determined that that is what caused the mass to form.  By the time it was taken out, it was a bacterial infection surrounded by scar tissue and inflammation.  It took weeks to grow cultures from the tissue samples and identify the culprit - which is mycobacterium avium complex, or MAC.
The quick facts on this bacteria are that it is found everywhere and most of us carry it;  that only immuno-suppressed people like cancer, transplant, and HIV patients develop disease from it;  that it is in the tuberculosis family but is not contagious;  that it attacks the lungs by forming nodules;  that it is not easy to get rid of;  that it is curable in about 70% of patients;  that those who are cured relapse at about a 50% rate;  and that the development of nodules and other symptoms (bronchitis, shortness of breath, etc.) varies a lot from patient to patient.
The treatment is a very lengthy course of a 3-antibiotic combination which I will start soon.  When I say lengthy, think 1 to 1.5 years.  I think Dr. Kritz put the whole thing in perspective very well:  "THIS IS GOOD.  It's not cancer.  It's not tuberculosis or some other contagious disease.  It's not a particularly virulent disease.  And it's curable."
Since my surgery I have returned to my maximum intensity workouts on the Stairmaster and I am up to a 50 mile bike ride, so my health continues to be good despite all this, for which I am grateful to the Lord, from whom all blessings flow.  And you know, whatever our health situation, the Lord holds our futures - tomorrow, next year, eternity - in His hands - yours and mine.  That gives me peace - and not like the peace the world gives.

Saturday, June 14, 2014

Fletcher Flyer Inspiration Dinner Speech

Hello, it's been a long time since I spent a Saturday morning at home - I've been either playing golf or cycling each and every Saturday since February.  One of the things I wanted to get done today is to get the video of my speech from the FF Inspiration dinner up on the web and I've done it - here you go:


Some have asked me this question, so as a footnote, when I gave that talk, I knew I had a mass in my lung.  Thanks to Rachel for shooting.  My incisions are healing nicely.  Taking it easy at home for a few days.   Happy Father's Day to HLR III and all the dads out there.  Dan

Thursday, June 12, 2014

Post Op Report

Hello everyone, this pic at left is of me and my brother-from-another-mother, Keith McElrath at the Hasentree Member-Guest, taken Saturday.  That day I had a "mystery mass" in my upper right lung.  Today that mass is in a lab and I have about 10% less lung capacity today, but I'll get that capacity back.  The mass is identified as an  infection surrounded by a cocoon of inflammation and scar tissue called a granuloma ...but NOT lymphoma!!  The operation to get the biopsy was more involved than we first thought.  Dr. Chang had to put a breathing tube in my left lung, then collapse the right lung so he could work on it - "wedge out" the infected and inflamed tissue, staple the lung together, and exit the diseased tissue.  He left a tube in my chest cavity - actually in my side - to drain fluid out after the
Kenyon and Buddy Jake mugging with their masks on in my room at Rex
operation.  I am hoping to be discharged from the hospital today.  Of course I have some pain at the two incision sites (one still has the tube in it) but still today is the target for going home.  All in all, we believe by faith that the Lord answered all the prayers of His people, out of His abundance of love and grace.  I simply stand in awe of His work in my life and I want to use these trials to bring Him honor and Glory.  Thanks everyone for your support, prayers, positive thoughts, and note/FB posts, etc…..I'll update when I get home - Dan

Monday, June 9, 2014

Fletcher Flyer Weekend and Upcoming

 ** Don't miss the medical update at the bottom **


Start of the ride - 1,000 cyclists

Greetings friends and family.  Well, Renee and I (and Rachel) had a stupendous weekend in the mountains of western NC.  After 5 months of training, I completed the 100 mile Fletcher Flyer bike ride!!  I went 17 miles further than  I had gone in any previous training ride, and finished strong and sore.  I raised $5,000 for LLS in the process, good enough for 2nd place among the 50+ TNT riders - and my thanks go out again to all those who donated to the cause!
On the Course with the Triad Team

After driving out to Asheville on Saturday, we checked in to our hotel and got ready for the inspiration dinner, a gathering of all the Team in Training (TNT) participants and their families.  I was asked by the TNT staff to give the survivor's perspective and I will have the video up soon if you want to check it out.  It's about 22 minutes in length.

The ride itself traces out a labyrinth of roads that generally criss-cross through beautiful river bottomland and the towns of Brevard, Mills River, Etowah, Horsehoe, and, of course, Fletcher.  The course had a total elevation gain of something like 4,300 feet, but over 100 miles, that's not too heinous.    4 other riders came out from the Raleigh team with me, and on the ride I met a bunch of great TNT folks from Greensboro, Winston Salem, Georgia, and Northern Ohio.  The team spirit and camaraderie were outstanding.  There were 6 rest stops along the way, each equipped with porta-johns, fresh and packaged foods, water and gatorade, a first aid station, and a bike mechanic tent.  Since we were not 'racing', we made good use of the rest areas!
Finishing Strong with David, Wendy, Liz, Beth, Rob, and Singh from the Triad Team

At mile 49, the course passed the gravel road that goes to my sister-in-law Karen's house.  Renee, Rachel, and Karen were out there to cheer us on (link to clip --->  HERE )

After the ride, Renee and I spent Sunday evening with Karen and Scott (Rachel had to motor back to Raleigh to be ready for her first day of work on Monday) at their cozy mountain cabin in Mills River.  Then Monday morning we drove up the beautiful Blue Ridge Parkway to Blowing Rock, NC to spend another lovely evening with Bill and Michelle Joyce at their mountain retreat.  Wonderful views, wonderful friends, fabulous food, and great wine.  A blessed time.  Back to Raleigh on Tuesday to face new challenges.

On the Thursday before Memorial Day, I had my 6-month CT scan.  On the tuesday following, Dr. Kritz called - which is never a good omen, because when the tests are negative he has a staff nurse make the calls - and let me know that the CT showed an anomaly in my right lung.  Since I am not showing any signs of pneumonia, that can be ruled out as an explanation, but there are innumerable viruses and bacteria that can cause infections of different types, some which carry little or no symptoms.  So, it's likely either a lymphoma relapse or an odd infection.  We are going with a surgical biopsy so that there are no mistakes or indeterminate results this time.  We will have a consultation with Dr. Albert Chang tomorrow (June 5) and schedule the biopsy from there.  Dr. Chang is the same doc who performed the operation in September 2011 that ultimately determined that I had lymphoma, not lung cancer.  ---->  Update today, June 9:  after a PET scan this morning, we consulted again with Dr. Chang and will proceed with the biopsy, tentatively schedule for tomorrow, June 10th, pending insurance approval.

As we face another time of uncertainty and stress, we are "battle ready" - we know beyond a shadow of a doubt that the Lord is with us, He is for us, and He has everything under control.  He wants us to trust Him completely with this life and the next, and we do.  Until my next update, we are wishing you God's best….Dan

Sunday, May 25, 2014

One Week From Today

Fletcher Flyer Donation Page         <------CLICK HERE


On the Summit of Mt. Whitney with Mike Nix - 9/5/13

Greetings once again friends and family…..today is Sunday the 25th of May…one week from right now I will be laboring along the Fletcher Flyer route.  We have a full weekend planned in Asheville, and Renee and I will be driving up to Blowing Rock on Monday to visit some dear friends.

The fund raising is going well, and as always I want to thank all of you who have been supporting me financially and with encouragement and prayers.  I feel like I am ready to do the 100 miles, though I know the weather will be an important factor.  If it's hot or rainy,  that will make the ride more of a struggle.  Last Sunday was my last training ride with the TNT, and I made it 83 miles…..the weather was great, temps in the 60s and some overcast.

I got my 6-month CT scan check on Thursday and I am waiting to hear from Dr. Kritz next week if all is clear.

I want to thank Todd Spain and Elaine Tarkington for their great coaching and encouragement - but also a shout-out goes to the whole team including our Sag team Suzanne and David, Ruth, our long distance specialist, Bill, Cathy, Pam, Tisha, Deidre and everyone - it really is a TEAM and I am blessed and proud to be a part of it!!  GO TEAM!!!

Peace - Dan

Saturday, April 19, 2014

6 Weeks to Go


Fletcher Flyer Donations - Save Lives HERE

Hello friends and family, it's a rainy Saturday morning and I would have been on the golf course now - but it's a good opportunity to catch you up with things.  My weekends have been very busy and active lately as I have tried to keep up my weekly golf game and also do a long training ride on the bike.  Last weekend started with a drive down to Augusta on Thursday afternoon, followed by a day Friday walking the hallowed grounds of Augusta National, watching the Masters.  It was my 5th time to experience in person what I think is the finest sporting event in the world.  I was a guest in a house overlooking the Savannah river.  This photo was taken from the back deck.  The accommodation (in North Augusta) was almost as beautiful as the golf course!

Well, my plan was to ride with my TNT mates on Saturday but I didn't want to drive all evening Friday after being on the golf course all day at the Masters.  So, I slept there until 3 am Saturday, got up and drove 4.5 hours straight to the meet up point in Apex, with my bike and all my cycling stuff in the car, then rode with the team 50 miles.  It was 10 miles farther than any other ride I had done.  Every week now we are riding farther, pushing the mileage up little by little (well maybe 10 miles isn't a little).  Each practice, I get to know team members better - and the bonds of being together in a battle grow stronger.  Team in Training is just a fantastic organization…with each event, I see more and more what being a part of the team is all about. I'm looking forward to June 1st, which is the date of our Fletcher Flyer Century, but as soon as it is over I will be thinking about the next event.  This photo was taken that Saturday, about 5 miles from the finish, with Jordan Lake in the background.
SO, back to my weekend schedules - I'm playing golf and riding on alternate Saturdays and Sundays, and we've been attending the Summit Church on Saturday afternoons at 4 pm.  Work is very busy but going well and my health continues to be excellent.  This winter has been much, much better than last winter in terms of viruses, infections, and the like.  For this I thank God.  We are celebrating Easter this weekend - the death and resurrection of the Lord Jesus - he was crushed for our iniquities, pierced for our transgressions - by his stripes, we are healed….awesome!

For those of you who are still with me, I have a video link to the talk that I gave at the Raleigh Chinese Christian Church several weeks ago.  It is 37 minutes long, but gives a full perspective on my life's journey and the valley of cancer.  Here is the link:

Dan at RCCC

The Rookers wish you a happy and blessed Easter weekend.  Dan

Monday, March 10, 2014

March Training Update



Speaking at the Raleigh Chinese Christian Church, Sunday, March 9th. 


Click here for Team in Training Fund Raising Site

(this text is also at my TNT site)
         Hi Friends and Family...well, I actually thought a 100 mile bike ride would not be that big of a challenge.  I WAS WRONG.  For a person who has never ridden a bicycle for more than 37 miles, it is a HUGE challenge.  Over the past 3 weekends, I have done training rides of 30, 39, and 36 miles, with an average speed of 15 miles per hour.  My coach, Todd Spain (and his able partner, Elaine Tarkington) say I'm doing great, but I don't think it's a positive sign when I am out there 20 miles from home thinking about whether I can get a decent price for my bike when I sell it on Craigslist!!

         Then, I think about the children who are still battling leukemia and lymphoma, and I grind out the miles....I literally think about the promising treatments that LLS is funding as I struggle up the hills, and the stories like Emily Whitehead's - her life was saved by an experimental treatment funded in part by LLS (see "Fire with Fire" video on Youtube).  This past weekend I spoke at the LLS "Mission Day" about my cancer experience - how miraculous my treatment was, how statistically unlikely it is that I am alive today.  I told the team, it's hard to know the mind of God, but there's no doubt that one of the main reasons that I was spared and given a new "lease on life" was to be there that day, with that team, fighting this fight together.  

        Sunday I spoke to 100 people at the Raleigh Chinese Christian Church - photo attached - I like this photo because over my shoulder to the left there was a screenshow playing photos from my blog - the team at the church did this and didn't tell me in advance - but it was a beautiful backdrop to my story of God's love, mercy, and the mission He has given me.  I am grateful to everyone who has donated and especially those precious few who have already donated to all 3 of my endurance events.  Please consider a gift, no matter how small, to LLS and these children and their parents who so desperately need your help.

PS - in the background photo, it's me with Alice Lynn - my main medical nurse in Dr. Keating's clinic and Coy (on the right), the happiest, most joy-filled lady you would ever want to meet in a cancer clinic.  Both are treasures to me - photo was taken in November 2012.  The photo with me and a microphone was taken Sunday at the Raleigh Chinese Christian Church.

Thursday, February 6, 2014

Check Out Fletcher Flyer Fundraising Page Update

FF FR Page Latest - CLICK HERE

Folks, I also wanted to update you on my fledgling speaking ministry - one of my close friends who is an elder at Providence Baptist here in Raleigh invited me to speak to his adult sunday school class, in two sessions - the men on Saturday morning, where I shared the story of how I became a Christian, and Sunday morning in the couples' class, where I shared the role my faith played in my walk through the valley of cancer.  Renee and I had a great time at Providence, including the worship service before the adult SS class.  Thanks to our beloved friends Jeff and JoEllen for the invitation.  This is a pic of me at the Saturday morning coffee with the men.  More soon, lots of exciting stuff going on!!  



Wednesday, January 29, 2014

Hello 2014!!

Dan's Fletcher Flyer Fund Raising Page

Salutations to everyone and I guess I should add Happy New Year!, since this is my first post of 2014.  It's not that there hasn't been a lot happening, I've just been delinquent in making updates.

On the health front, all the tests that were done in Houston in late October were negative.  I posted on Oct. 27th that all was well, but that there were a few results that had yet to come in - it actually took almost 4 weeks before I got the final "all clear", which was again, a great relief.  As far as how my winter is going in terms of general health, it didn't start too well, as I contracted sinusitis right on time just before Thanksgiving, which required 3 different antibiotics over a 5 week period to get rid of.  Just before Christmas, I developed shingles in my mouth, face and nose….probably sounds worse that it was, but it was no fun, and there's no treatment.  Once that cleared up, things settled down and (knock on wood), January has been malady-free.

Renee and I spent the Christmas holiday in the Chicago area with my parents and my sister Jill and her family - here we are at my folks' house:

Bottom row, L to R - Joseph's fiancee Natalie, Renee, Mom, Jill.  Back row: Jill's sons Joseph and Philip, my son Kenyon, me, my Dad, and Jill's husband Mark DiCicco
  I am planning a fundraising event this year, in the form of a 100 mile bike ride, the "Fletcher Flyer", which takes place in Asheville in June.  There is a link at the top of this page to my fundraising page.  As with most Team in Training events (TNT is the endurance-race fund raising arm of the Leukemia and Lymphoma Society), we will TRAIN for this race - while it is still cold, we are meeting weekly and doing a one hour spin workout.  Once it warms up, we will hit the road together.

There are a few more things I want to share with you, but I will save them for another post, coming to you soon.  I appreciate any and all donations to my 2014 event, as I continue to do what I can, with your help, to fight blood cancers.  God bless you….

Sunday, October 27, 2013

Houston, We Have No Problems :-)

With Renee and AnneMarie Wallace, our "Pastor in Houston" and my host for the Awards Dinner
Hello all, it's Sunday evening and I'm watching a little baseball....we had a special week in Houston with my parents and my sisters.  They came to town to attend the MD Anderson Chaplaincy Fund's annual fund raising dinner, at which I was one of the speakers, giving the patient's perspective on the importance of the chaplaincy program at MDA.  It was a great evening, attended not only by my immediate family, but also my transplant doctor, Dr. Chitra Hosing, my Stephens Minister, Dorian Benn, my new pal from the JMT, Steve Roberts, the Archbishop of Houston, Daniel Cardinal DiNardo, and my dear friend and pastor from the First Presbyterian Church and Chaplaincy Fund Board member, AnneMarie Wallace (and another 200+ donors and guests).

With the FAM at the Rotary House on Saturday
We were also in Houston for my annual battery of tests - which also went well.  The main tests for cancer are the PET scan, which was negative, and the bone marrow biopsy - the biopsy results come in over a couple of weeks - the initial findings just say whether you have a normal proportion of the various kinds of blood cells in your marrow - and I passed that test.  The second test is called flow cytometry which examines individual cells to determine if any cancer cells are present.  I should get that result sometime next week.  I'll post a brief update then.  Thanks to all your prayers.  We feel very blessed.  Dan

Tuesday, October 15, 2013

Chapter 5 - Push to Mount Whitney and Civilization

Bubb's Creek in the foreground;  the path up to Forester Pass in the background
Chapter 5 starts with Day 22 and a 3,000 foot climb to Forester Pass, the highest pass on the JMT by over 900 feet.  The additional elevation caused a little anxiety, but we all topped out by 11 am or so.  This pass was also different in that it is very narrow and the south ridge is very steep, even a little dizzying - here I am at the top with Mike mugging in the background:


This was the view looking South, in our direction of travel:


Those clouds would build into a pretty solid rain as we were descending.  This photo gives you a flavor of the exposed and narrow trail descending the pass:


We walked through a rain shower which paused just long enough for us to have lunch, before it started raining again.  When we arrived at our campsite, "Frog Ponds", it stopped long enough for us to get our tents up, then started again and continued for about an hour and a half while we chillaxed in our dry shelters.  After the clouds blew away, we emerged from our tents in the late afternoon and I got this shot of a flat-top mountain - something we saw very rarely in the Sierra - with Frog Pond #2 in the foreground:



One more photo from this day - this was special - even Alex said he had not seen this effect before....I had crossed the meadow beside the ponds to get a higher perspective on the mountains to the west, where the sunset was taking place.  I think we've all seen sunsets where the sinking sun illuminates the bottom of a cloud deck from below - and that's what happened that evening....the cool part was that the mountains that were silhouetted and in deep shadow were glowing with the reflection off of the clouds above:


I remember seeing a quote on a plaque in Zion National Park that went something like this:  "Who can behold these wonders and not see the hand of God?"....that captures my feelings well.

So, onward to Day 23.  This was a big day because we got our first view of Mt. Whitney about mid-morning:

Mt. Whitney, 14,508 feet - the highest peak in the "lower 48",  coming into view
 Our destination for this day was Guitar Lake, which would also serve as our base camp for our attempt on Mt. Whitney.  Guitar Lake sits at 11,500 feet, well above the tree-line and our highest camp of the trip by 700 feet or so.  We camped above the lake - if you look closely in the center-left of this photo, you can see several tents down nearer the water.  Gives perspective.


Something really remarkable happened at Guitar - one of our initial group members - Sarah from Savannah - after quitting the trip back at the Vermillion Valley Resort (stomach bug) and poking around the Bay area for a few days - joined another SYMG trip, a cross-Sierra excursion of about 10 days.  She had been told by Ian that that particular trip would probably be at Guitar Lake on the same day as we would, and so - as we sat on the rocks in the afternoon, this lady in a blue coat starts making her way up the hill toward us.  Mike says "she looks and walks like Sarah".  I say, "nah, and anyway it can't be Sarah, she's surely back in Georgia".  We continue to watch her walk up the hill.  Mike: "she's waving at us".  Me:  "that's because we're staring at her".  Well, of course eventually we all realized that it was really Sarah and I ate my words - this is Midge giving her a big hug:


We were all pretty knocked out by Sarah's reappearance and we sat around for an hour or so listening to her wild account of the previous two weeks and everything that happened after we parted ways at VVR.  It was really extraordinary.

So now onward to summit day, Day 24, which started with my watch beeping at 3:20 am....I would say it woke me up but I didn't sleep much and apparently none of us slept well.  This was my second oh-dark-hundred ascent - the first one was of Mt. Kinabalu, in the Malaysian state of Borneo back in 2002.  We hit the trail at about 4:15, very happily unencumbered by all our grear - this was a day-hike so all we needed to bring were our clothes, water, and a few energy bars.  This is my first photo of the day, taken around 4:30 am:
From left, Carlos, Ron, Mike, Midge - smiling even at 5 am :-)
 We climbed in the dark, using our headlamps to light our way, and as we switchbacked up the ridge, the first cold glow of dawn lighted up the giant wall opposite our trail:


It pains me to know how impossible it is to get perspective from these two-dimensional photographs - for example, the lakes really don't look like they are 1500 feet below where I am standing, but they were.  The trail by this time was often narrow, exposed, and accompanied by precipitous drop-offs.  Geographically, the ridge that Mt. Whitney sits atop is very near the easternmost edge of the Sierra.  The mountains fall away dramatically down to the Owens valley, in extreme eastern California and adjacent to Death Valley and the Mojave desert.  None of that topography had been visible to us for the duration of our hike, and as we neared the top of the mountain, there were a couple of "notches" in the ridge wall where sunlight was streaming through from the east - in absolutely glorious colors.  This was another in the accumulating signals that we were near the end of our journey.  Here is what it looked like:

To the right is west, to the left, east and the desert.
In the center of this photograph is Guitar Lake, 2500 feet below - you can see where it gets it's name.  This captured the first light on the high peaks towards the north and west.


 One more shot before the summit - again, looking through a notch on the ridge towards the east:


I know I can't convey the emotion that I felt as I made the final steps to the summit, but I can tell you that I was overcome thinking about how far I had come - from a very bleak cancer diagnosis, but with a narrow and dangerous path back to health - two rounds of chemo that HAD to work in order to tee up the transplant - which of course had to work - then, slowly, everything working just right and in God's timing, I am completely restored.  To be blessed with a medical and spiritual miracle is amazing and I can honestly say that I am unworthy of it, and boundlessly thankful.  I am also thankful that if God had not chosen to extend my life, He would still be MY God and I would still be His child and enjoying Him forever.





I got the idea for this photo somewhere along the trail.  It is reminiscent of the poses I have seen military members assume near fallen comrades' boots and gear.  In the fight against cancer, there are literally millions of fallen comrades.  I am blessed to be able to continue the fight.











This one reminds me of many classic summit photos I have seen - shows how cold, windy, and exposed these places often are.  A "selfie".











My half-crazy buddy, Mike, scrambled out a narrow and sketchy rock wall to get to this perch, about 60 feet from the trail - he was then joined by our guide, Alex, who skipped across it like it was nothing - I stayed safely and sensibly on the trail in order to be able to take good photos.  And stay alive.






This is what Mt. Whitney did to all of us - Mike is merely exhibit A.  This is after descending to Guitar Lake - where we had to gather up our gear and hike 5 miles down the trail to our camp for the night, making it a 16 mile day with an elevation gain of 3,000 feet and loss of 4,500 feet.  Argh!







In honor of Ansel Adams, the greatest black and white landscape photographer who ever lived, I offer this last view of Mount Whitney, as we hiked away:


Well, as Alex put it, like every good book has a climax and then an ending - our trip's climax was our successful climb of Mt. Whitney, but we still had an ending to look forward to (or endure, as some saw it).  We ended Day 24 camping at Crabtree Meadows near a tumbling creek that had natural showers and pools which were great for getting scrubbed up.  Then, another 11 mile march on Day 25 to a lovely and secluded lake called Soldier Lake.  This lake had the most selective trout I have ever seen in the Sierra.  They were eating like crazy, feeds every few seconds at least - but they would not eat the flies I was throwing and I threw about 8 different kinds!  I could not "match the hatch" which appeared to be tiny gnats that were coming off the bushes and landing on the water.  Frustrating as it was, I take my hat off to these beautiful and sometimes finicky fish :-).  This is a visual taste of what Soldier Lake looked like in the late light:


For the last 2 nights, I had slept without the fly on my tent - the upper half of the inner shell is made with netting, so going without the rain fly has the effect of sleeping under the stars.  On most previous nights, there were passing clouds that could not be trusted, but these last few days and nights were mostly cloudless.  It is wonderful to awaken any time in the night and open your eyes to the glory of the night sky.  I remember one 5 minute stretch of being awake and seeing a meteor flash across my view, then two satellites cruising by and also finding the Great Galaxy in Andromeda, which was positioned overhead at that particular hour - fantastic.

Now comes Day 26 - we had another 10 or 11-mile haul to the trailhead, where we were met by a welcoming committee from SYMG - they put out a lunch spread that was sumptuous and also had a cooler full of very cold drinks for us:


The three Amigos, who hiked the entire trail, starting in Happy Isles, down in the heart of Yosemite Valley.  Enjoying a very cold and appropriate "Sierra Nevada Pale Ale".  We had a ride waiting for us which took us to a Best Western Motel in Lone Pine, CA, got cleaned up, caught a nap, called everyone, and headed out for a celebratory dinner, at which I took no pictures.  The next day (Day 27) we rode 5 hours in a bus back to Fresno and spent another night in a hotel waiting for our flight the next day.  And then, on Day 28, we flew east - back to Raleigh.

It was a joyous reunion to say the least.  Whoever said "absence makes the heart grow fonder" knew what they were talking about.  My appreciations of the wilderness, and my family bonds, my love for the little place we call home, all deepened and strengthened.  At the end of the day I will have raised over $130,000 for the Leukemia and Lymphoma Society, through the generosity of well over 100 donors, for the purpose of fighting and winning the battle against blood cancers.  I am deeply grateful for all your support.  I am also grateful for all of you prayer warriors who remembered to pray for me.  I think your prayers were answered in so many ways.  Praise God, from whom all blessings flow!  Here is my parting shot, inspired by the Muir Project's trademark photo of the hiking boots lined up:


Thanks to Southern Yosemite Mountain Guides - Ian, Alex, Carlos (WE ARE IN THE MOUNTAINS!!!) - for your commitment to excellence, your love of the wilderness, and your companionship.  Thanks to Steve, Younga, Bill, Sarah, David, Russ, Karen, Dave, Ron, and Midge - you made it great.  A very special thanks to Mike for making the big commitment to do this trail with me - love ya, man!  And to Tiffany and the gang at LLS for your partnership and support.  And Jeff - we did it just like you said we would - thanks for being such a great friend throughout my illness and recovery.